Saturday, February 28, 2015

I am Not Sure This is Diabetes

Yeah, so okay, I am a diabetic, but I have been feeling something for a few months now, and although I feel it, it is hard to put into words just what that feeling is. I am going to try to do that here so that I can sort this in my own mind. First and foremost, I do not think that this is diabetes type 2. It might be,  but I have never felt like this before - well at least not in direct relation to my diabetes.

I have felt this before, but before, I knew what it as. This is a feeling of what I call a very vague feeling of over-all general malaise. You know that feeling you get after you have the flu. Not just a few day thing, but the full-on, knock-you-on-your-ass flu that keeps you flat on your back with aches and fever. The kind of flu that takes weeks to get over, even after the flu itself is gone.

You feel weak and any sort of exertion is met with lightly perspiring and huffing and puffing tying to catch your breath. You feel better than you did when you were in the middle of the flu, but you know you are not quite at 100% yet. Maybe you are more like 75%. THAT is how I feel right now and have been feeling this way for at least 6 weeks.

I have not been sick this winter, I was a good girl and got my flu shot back in November. So I am pretty sure this has nothing to do with the flu or a cold or whatever cold wintery junk is floating around out there. It was a sudden onset of this feeling. I have trouble catching my breath and even just sitting watching TV I experience those light sweats I mentioned above. It happens several times a day and night. I am not sure if I am feeling these things, or perspiring at night when I am asleep.

Its not the feeling you get when you think you might be coming down with something, this is definitely more like I have just recovered from something, but what??

About 3 years ago, I went through some sort of a gastric issue that made me feel somewhat similar, but not really. Still to this day no one knows what it was. I had stomach issues, diarrhea, those disgusting "eggy, sulfer-ish" burps and when I went to the doctor my blood tests shows a very high eosinophil count (white blood cells) indicating that I was fighting some sort of infection. I even subjected myself to a colonoscopy ( I was 50 so needed one anyway) to try to diagnose what was happening. The colonoscopy showed nothing unusual and just as sudden as the symptoms appeared, about 2 months later, they disappeared and I felt fine.

Maybe this is related, I don't know. What I do know is that it will be very hard for me to answer the question - "Why are you here to see the doctor today?" with any intelligence and not sound like a complete hypochondriac.

I have been under a tremendous amount of stress since about June of last year. Could it be the stress taking its toll on me? I have been under a lot of stress before, but never had these symptoms. Of course, I am getting older and I am sure that my body handles things differently now. Still I am not sure I can just dismiss this as stress. I have run the gamit of what this might be and so far nothing. Or everything. You would be surprised (well maybe not) how many different diseases start with "A feeling of general malaise or feeling unwell."

So what is this?

I will take any and all advice or thoughts. ....

Friday, February 27, 2015

Diabetes and Alcoholism Do Not Mix

My diabetes is not a happy camper right now. Recently my family has been dealing with some issues that, reflecting back a few years, I never would have guessed - even in my wildest dreams - we would be dealing with.

Monday, September 29, 2014

So Much for Positive Thinking

Reading back through the last few posts I am realizing what a whiney baby I have become!

Saturday, September 6, 2014

Grumpy Diabetic

This just says it all for me today...Fasting bs - 272 blah.

Friday, September 5, 2014

Monitor time

My God, you would think that getting the insurance company to help with the costs of a meter and strips constitutes a national crisis!

I have two meters at home, the problem is I am not "home", I am in Atlanta visiting my poor lonely husband and of all things to forget, meters and strips were top of the list it seems. My new doctor put in a script to get new ones here in Ga, but that is asking too much of lovely Aetna. I really shouldn't complain I guess, with the long and winding road of meds for this annoying disease, they have not baulked once at paying for anything. It just seems that when you want testing supplies, you have to go through different channels and those channels are not quick. The time quoted was 7-10 working days. Shit I will be back in Florida by then! So I went with another solution that required money out of pocket.

Walmart has come out with their own diabetic testing supply line and expensewise it is VERY reasonable. I bought a meter for around $17, 50 strips for $9 and lancets for like $4 So this will get me though til I get back home.

So the good news is my reading (about 4 hours pp) is 197. The bad news is that my reading is 197. Not great, but a bit better than the near 400 I was at last week.. at this point I will take what I can get.

Janumet so far is making me a bit queezy, especially in the mornings when I wake up, but it seems to resolve as I get up and get going with my day.

It also seems to be making me tired.

So lets see what the morning fasting result is going to be. 

Thursday, September 4, 2014

Fell off the wagon, again.

I am guessing that after 2 years it might be time to "blog it up" once again.

The last few years have been uber busy and stressful, many things I won't go into, but I will tell that I fell off the "Diabetic in control" wagon.

I call it burn out, others call it fed-up, tired, denial, whatever.

It happens, we are human after all. A diabetics day (whether type 1 or type 2 or any other of the lastest version of diabetes) is full of reminders, no-no's, monitors, medicine etc. Many days when all we want to do is forget we have a pain-in-the-ass chronic disease, we are faced with a myriad of decisions and reminders that we do indeed have this disease and we are not like "normal" people.

The hardest part of this disease, for me anyway, is the food to mouth aspect. I cannot eat like most people around me, I can't even eat at the same times that many people around me do. I must juggle food timing as well as the actual type of foods I choose to eat every single god forsaken day and let me tell you something - it. gets. old.

Yeah, yeah I know I should be thankful for _______, or I should count my blessings that I don't have ________ instead of diabetes, and most days I do, but I am, once again, human, and things do get to me. I am the first one to admit that I need to wrestle with that particular demon and slay it once and for all.

So roughly 2 years ago, the demon slayed me. I was tired. I had been good for 3 full years prior. I lost a lot of weight, my readings were all very good. But I could feel the frustrations setting in when over the course of the last 3-4 years I was put on 4 different diabetic meds (some injections) and everyone of them after a period of time failed. One lasted nearly a year and a half - Byetta, but although Byetta was great for my numbers my quality of life failed. I was left weak as a kitten, felt as though I had a case of morning sickness everyday all day and it made my teeth hurt (a little nuisance I am paying for as we speak).

I couldn't take it anymore. Luckily a new injectable came onto the scene about this time - Victoza. Victoza was amazing! I lost another 10 lbs and the nausea and tiredness went away. I was on top of the world! That lasted about 8 months and all of a sudden the numbers started rising and the weight started showing up again.

At this time my doctor (as frustrated as I was) started me on the dreaded insulin injections. I learned a very valuable lesson with Levamir, if you are an insulin resistant diabetic, no amount of synthetic insulin introduced into your system is going to make those numbers drop. Obviously I am still producing my own insulin, my body just doesnt receive it.

So after a few months of that, back to Victoza I went and it worked again! ... for 3 months. Now what?

Well low and behold a NEW inject-able entered the arena...well more like a new version of an old medicine. Enter Bydureon. The diabetic Gods were listening to us after all! Byetta is a twice a day inject-able that must be introduced at a specific time relating to food; Victoza is a once a day inject-able that can be introduced anytime daily; now Bydureon is a ONCE PER WEEK injection any time of the day you choose!!!!

True the system for mixing and loading the syringe can be intimidating (lots of steps) I didn't care! once a week was just this side of heaven for me. So, after months of mixing, drawing and injecting (with a rather large guage needle - ouch) amid little hard lumps that would form under my skin at the injection sites, once again failure set it. Numbers ballooned, thirst ensued, hunger went crazy, ugh.

That was over a year ago.

Now, I am beginning again. I went off all diabetic meds about a year ago and stopped seeing my doctor. Throw a relocation into the mix (from Florida to Atlanta) and I have been spurred on to try again. My time-out is over and its time to stop playing this game.

My labs came back 4 days ago, I think it was a defining moment in my life. My fasting reading was 373, my A1c was an astounding 15.1. I am going to die if I don't get this under control.

So I am back to being a walking pharmacy:
  • 50/1000 mg Janumet
  • 20 mg simvistatin
  • 5 mg levothyroxin
  • 50 mg zoloft
  • 1mg lorazapam
  • Cipro (bladder infection
So here we go again, lets see what road this takes me down.

Oh and PS just to keep track, weight is 192
PSS That is NOT my foot above, I just wanted to get your attention lol, wow.

Wednesday, February 1, 2012

Choodles and Seizures: Attempting to understand why

So about a year ago, my littlest maltipoo (formerly thought to be a choodle, but blood tests have changed our minds), anyway my littlest maltipoo began having seizures. Now that I think about it, it was more in the area of 1.5 years ago.

I remember sitting on the couch in my living room, the poo's (for lack of a better nickname I will call them poo's since they are all related to poodles in some way) were happily surrounding me and sleeping - something that the poos do very well - all except the littlest poo - my maltipoo, Cheddar. Just about the time I thought how odd it was not to have him nearby, I heard a very loud noise at the doggy door, which turned out to be Cheddar attempting to enter from the back patio. He made it through the door just in time for me to witness his complete loss of balance, falling over to his side.

Of course I ran to him and picked him up, hoping to sooth away any hurt of embarrassment he might have suffered, only to find he was stiff and unresponsive. His eyes were glazed, and his head was thrown back in what can now only be called a very disturbing angle. As I carried him to the couch, my mind was working 1000mph reaching through to my years as a veterinarian technician to discover what this could be. Had he been poisoned? Or was some unknown disease taking hold. My mind settled not on my experience as a vet tech, but even further back in my life to the memories of when I was a young girl.

My mother had poodles. Two little black females and their mother a chocolate poodle named Suzi. There were toy poodles. The largest of them all, Sweetie, had seizures and my mind latched on to these memories. All the usual signs were there - stiffening, glazed eyes, legs begin to paddle, drooling - all these things Cheddar was now doing.

I held him for several minutes as he completed his seizure and settled down into my lap. I have to confess I was afraid to put him down thinking that it might trigger another seizure or that he would no longer be able to walk.

As it turns out, he was just fine. Since that time a year and a half ago, we have relocated to Florida for good and not a month goes by that Cheddar does not have a seizure.

It's commonly called "white dog syndrome" and appears to be prevalent on several of the smaller breeds such as poodles, Maltese and no one can find a true cause for the seizures.

I have discussed the issue with my veterinarian and she and I both feel that if the seizures are not affecting him and he sticks to one per month, that there is no real reason to worry or to put him on anti-seizure medications. Many experts even feel that adding anti-seizure meds can increase the seizure activity - go figure.

So I continue with my little seizure prone Cheddar and he has learned to come and find me before the seizure hits. It must be a feeling he gets before the seizure activity begins. Sometimes he makes it to me and judging by the panic stricken look on his face I know what is to come. Sometimes he doesn't make it and I will find him under chairs, in hallways seizing.

But I always hold him quietly until it passes and after about 10 minutes or so he is fine and on his merry way to bark at the TV, or one of the ducks that roam the back yard.

This dog has it made, maybe he plays me with these seizures - but it works.